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Double Checking Doctors' Information With Fibromyalgia &Chronic Fatigu
When you have fibromyalgiaand chronic fatigue syndrome, you've got to educate yourself about your condition and every treatment you consider. If we left it all up to the doctors, we'd be in big trouble!
I had a recent reminder of this. I'd been talking to my primary care provider about my sleep problems, including my inability to tolerate sleep aids. He brought up a drug I wasn't familiar with and explained that it's a sleep inducer -- it puts you to sleep, then wears off in just a few hours, instead of the 8 or more hours that are typical of sleep meds. I told him I was concerned about side effects like the next-day hangover, headaches, or sleep walking. He said side effects really weren't a problem because if I did have any, they'd be gone in 3 or 4 hours when the drug wore off.
I accepted a prescription, but I fully intended to do some research of my own before filling it. I can tell you, this may be a great drug for some people, but after a little reading I tore up the prescription and threw it away!
What I found was that the drug he suggested actually has an extremely highrisk of side effects -- including all the ones I was concerned about and some that are even worse -- and they can even continue after you stop taking the drug. Given my own bad experience with sleep meds and the experience of close relatives, there's no way I'm taking a chance.
And it's not just with drugs. We have to do our own research even on basic information. More than once, I've had a reader here tell me she was relieved to find information on brain fogbecause her doctor had said it wasn't part of fibromyalgia or chronic fatigue syndrome! Seriously, how does a doctor not know we have cognitive dysfunction? I've also heard tale of some doctors diagnosing "fibromyalgia with fatigue"because they don't think fatigue is normal in us. Wow.
I've written before on double checking test results, which I highly recommend for everyone.
Have you caught your doctor sharing misinformation about your illness or a treatment? Did you learn this lesson the hard way? Leave your comments below!
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Double Checking Doctors' Information With Fibromyalgia &Chronic Fatigue Syndromeoriginally appeared on About.com Fibromyalgia &Chronic Fatigue Syndromeon Monday, July 11th, 2011 at 06:00:04.
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